Happy New Year
The babies met with a team of specialist at Morristown Memorial in what they call their "Special Care Follow up Program." Charlton passed with flying colors and even showed them how he could roll back over after being on his stomach. This was the first time he had done that. They said he is functioning at a 4-6 mth level. (He is currently 5 months corrected) Savannah was measured at a 3-4 month level. She is not yet rolling over like her brother so they gave us some positioning techniques to work with her on. They also want us to change her formula back to Neosure to get the extra calories. We are also going to be scheduling an appt. with a Neurosurgeon to look at the shape of her head to fit her for a helmet. Lastly, she will also need to see an Ear, Nose and Throat specialist to scope her throat to see if there was any damage done to her vocal cord. She may have done some damage when she extubated herself shortly after her operation back in the NICU. She does make some sounds, but it is very quiet and no where near as loud as her brother. They will go back to the Special Care Follow up team in 2 months to be re-evaluated. Also, they will then get their hearing tested again. For the month of January CJ will be seeing another GI doctor for his gastro problems and then they will both be meeting the Opthamologist again for eye exams.
Thursday, January 1, 2009
Sunday, December 28, 2008
Sorry for such a delay in updating the site. Just prior to Christmas the babies had their monthly doctors appointment. We were surprised to find out that CJ hadn't gained any weight for the entire month. Chuck and I attribute this to his reflux that the doctors say he does not have. We are going to another GI in January to see what they think. Savannah has moved up on the weight scale and is now 13 lbs, where CJ is still 13 lbs 8 ounces. They are starting on level 2 foods this week, which includes things like Chicken and beef. The doctor still seems concerned about Savannah's spine even though the specialist said he didn't see anything. This has us a little concerned just because the treatment would need to be very aggressive, rods in the back and or body cast. We would really hate to put her through any of that. We still continue to pray for both of them.
We are also proud to report that CJ rolled over for the first time on December 23rd. Since then he has been rolling everywhere. However, it can't seem to figure out how to roll himself back so he gets frustrated very quickly. We are hoping Savannah will be rolling over soon as well, although she doesn't seem too interested in it.
They both go for a Special Care follow up on New Year's Eve at Morristown Memorial where they will meet with a team of specialist to check on their milestones or any alarming issues. We are hoping/praying to come home with a good score card.
Happy New Year to all.
We are also proud to report that CJ rolled over for the first time on December 23rd. Since then he has been rolling everywhere. However, it can't seem to figure out how to roll himself back so he gets frustrated very quickly. We are hoping Savannah will be rolling over soon as well, although she doesn't seem too interested in it.
They both go for a Special Care follow up on New Year's Eve at Morristown Memorial where they will meet with a team of specialist to check on their milestones or any alarming issues. We are hoping/praying to come home with a good score card.
Happy New Year to all.
Wednesday, December 10, 2008
Saturday, December 6, 2008
Savannah and Charlton recently had their monthly doctors visit.
Savannah weighed in at 11 lbs and is 24 1/2 inches long. Charlton now weighs 13 lbs 8 ounces and is 24 3/4 inches long.
Charlton had his appointment with the Gastrointestinal Doctor on Thursday. The doctor said that he has Growth Acceleration Syndrome, in other words (GAS). We are still a little surprise because sooo much of his bottle comes up with every feeding. We are going to start feeding him more cereal and vegetables/fruits by spoon. The doctor also mentioned that he can go on whole milk. I think we are going to hold off a while on that.
Savannah and CJ also met with their Pulmonologist on Thursday. Both currently have a cold and have caused them to both have a little wheeze in their lungs. They currently are getting breathing treatments every 4 hours or so. They actually seemed a little bit better today. The doctor also mentioned the X-rays from the last visit did show scar tissue for both babies, however, it wasn't as bad as he had expected. However, he has decided to put them on a preventative steroid which they will most likely be taking for a long time. We are all to familiar with the steroids because Ashley has to take them everyday as well. I guess it's good to have some knowledge in that department. We are also very familiar with how to use a Stethoscope, which has come in handy to hear the wheeze in the babies lungs.
Savannah will also be seeing a Neurosurgeon to see what is going on with the shape of her head. Actually it really doesn't look to bad, but is a little flat on one side. Basically he will tell us whether or not she should have a helmet.
We are still amazed everyday on how well both babies are doing. They are coming up on their 8 month mark, 4 months corrected. Both babies are still so close to rolling over, it should be any day now. Savannah has also changed so much in the last month. She is much strong and can hold her head up when on her belly. She is also much more alert and just starting to babble a little bit. She also will smile at you when you give her a big smile. These are all things that CJ has been doing, but just taking Savannah a little longer. At the end of the month they meet with a team of doctors to give us a progress report on their development. Basically we will find out if they are hitting their milestones and if not, what could be happening
Savannah weighed in at 11 lbs and is 24 1/2 inches long. Charlton now weighs 13 lbs 8 ounces and is 24 3/4 inches long.
Charlton had his appointment with the Gastrointestinal Doctor on Thursday. The doctor said that he has Growth Acceleration Syndrome, in other words (GAS). We are still a little surprise because sooo much of his bottle comes up with every feeding. We are going to start feeding him more cereal and vegetables/fruits by spoon. The doctor also mentioned that he can go on whole milk. I think we are going to hold off a while on that.
Savannah and CJ also met with their Pulmonologist on Thursday. Both currently have a cold and have caused them to both have a little wheeze in their lungs. They currently are getting breathing treatments every 4 hours or so. They actually seemed a little bit better today. The doctor also mentioned the X-rays from the last visit did show scar tissue for both babies, however, it wasn't as bad as he had expected. However, he has decided to put them on a preventative steroid which they will most likely be taking for a long time. We are all to familiar with the steroids because Ashley has to take them everyday as well. I guess it's good to have some knowledge in that department. We are also very familiar with how to use a Stethoscope, which has come in handy to hear the wheeze in the babies lungs.
Savannah will also be seeing a Neurosurgeon to see what is going on with the shape of her head. Actually it really doesn't look to bad, but is a little flat on one side. Basically he will tell us whether or not she should have a helmet.
We are still amazed everyday on how well both babies are doing. They are coming up on their 8 month mark, 4 months corrected. Both babies are still so close to rolling over, it should be any day now. Savannah has also changed so much in the last month. She is much strong and can hold her head up when on her belly. She is also much more alert and just starting to babble a little bit. She also will smile at you when you give her a big smile. These are all things that CJ has been doing, but just taking Savannah a little longer. At the end of the month they meet with a team of doctors to give us a progress report on their development. Basically we will find out if they are hitting their milestones and if not, what could be happening
Subscribe to:
Posts (Atom)
