Friday, January 2, 2009
Thursday, January 1, 2009
Happy New Year
Happy New Year
The babies met with a team of specialist at Morristown Memorial in what they call their "Special Care Follow up Program." Charlton passed with flying colors and even showed them how he could roll back over after being on his stomach. This was the first time he had done that. They said he is functioning at a 4-6 mth level. (He is currently 5 months corrected) Savannah was measured at a 3-4 month level. She is not yet rolling over like her brother so they gave us some positioning techniques to work with her on. They also want us to change her formula back to Neosure to get the extra calories. We are also going to be scheduling an appt. with a Neurosurgeon to look at the shape of her head to fit her for a helmet. Lastly, she will also need to see an Ear, Nose and Throat specialist to scope her throat to see if there was any damage done to her vocal cord. She may have done some damage when she extubated herself shortly after her operation back in the NICU. She does make some sounds, but it is very quiet and no where near as loud as her brother. They will go back to the Special Care Follow up team in 2 months to be re-evaluated. Also, they will then get their hearing tested again. For the month of January CJ will be seeing another GI doctor for his gastro problems and then they will both be meeting the Opthamologist again for eye exams.
The babies met with a team of specialist at Morristown Memorial in what they call their "Special Care Follow up Program." Charlton passed with flying colors and even showed them how he could roll back over after being on his stomach. This was the first time he had done that. They said he is functioning at a 4-6 mth level. (He is currently 5 months corrected) Savannah was measured at a 3-4 month level. She is not yet rolling over like her brother so they gave us some positioning techniques to work with her on. They also want us to change her formula back to Neosure to get the extra calories. We are also going to be scheduling an appt. with a Neurosurgeon to look at the shape of her head to fit her for a helmet. Lastly, she will also need to see an Ear, Nose and Throat specialist to scope her throat to see if there was any damage done to her vocal cord. She may have done some damage when she extubated herself shortly after her operation back in the NICU. She does make some sounds, but it is very quiet and no where near as loud as her brother. They will go back to the Special Care Follow up team in 2 months to be re-evaluated. Also, they will then get their hearing tested again. For the month of January CJ will be seeing another GI doctor for his gastro problems and then they will both be meeting the Opthamologist again for eye exams.
Sunday, December 28, 2008
Sorry for such a delay in updating the site. Just prior to Christmas the babies had their monthly doctors appointment. We were surprised to find out that CJ hadn't gained any weight for the entire month. Chuck and I attribute this to his reflux that the doctors say he does not have. We are going to another GI in January to see what they think. Savannah has moved up on the weight scale and is now 13 lbs, where CJ is still 13 lbs 8 ounces. They are starting on level 2 foods this week, which includes things like Chicken and beef. The doctor still seems concerned about Savannah's spine even though the specialist said he didn't see anything. This has us a little concerned just because the treatment would need to be very aggressive, rods in the back and or body cast. We would really hate to put her through any of that. We still continue to pray for both of them.
We are also proud to report that CJ rolled over for the first time on December 23rd. Since then he has been rolling everywhere. However, it can't seem to figure out how to roll himself back so he gets frustrated very quickly. We are hoping Savannah will be rolling over soon as well, although she doesn't seem too interested in it.
They both go for a Special Care follow up on New Year's Eve at Morristown Memorial where they will meet with a team of specialist to check on their milestones or any alarming issues. We are hoping/praying to come home with a good score card.
Happy New Year to all.
We are also proud to report that CJ rolled over for the first time on December 23rd. Since then he has been rolling everywhere. However, it can't seem to figure out how to roll himself back so he gets frustrated very quickly. We are hoping Savannah will be rolling over soon as well, although she doesn't seem too interested in it.
They both go for a Special Care follow up on New Year's Eve at Morristown Memorial where they will meet with a team of specialist to check on their milestones or any alarming issues. We are hoping/praying to come home with a good score card.
Happy New Year to all.
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