Sunday, April 20, 2008

We were pleased to see both babies resting peacefully today. The doctors are trying to leave them be as much as possible so they can recover from their surgeries. We were also surprised to see that both babies were able to open their eyes, since up to this point they were still fused closed. On the down side, we were also informed that both babies have infections. Savannah has two different infections and will be on antibiotics for six weeks. Charlton has one infection and will hopefully be on antibiotics for just a short time. We are trying to stay strong and just take it day by day.

Saturday, April 19, 2008

We are going to try to stay away from the Hospital today and get some kind of normalcy. We have called twice to check on the babies and they are having a restful day. Charlton is passing meconium through his stoma, which is great but Savannah is not. Savannah is also on a lot of respiratory support where Charlton is on little.

Friday, April 18, 2008

Today was horrible. Jen and I stayed the night at the Hospital last night to be close to the babies. They did ok through the night but both are needing a lot of extra support, drugs and attention. They both had ultrasounds done on their heads and the results for Charlton were normal but Savannah has a significant bleed in her brain. The Dr's rate bleeds in the brain by a scale of 0-4, 0 being no bleed and 4 being the worst, Savannah has a 3 on both sides of her brain. I don't really understand the math involved in the statistics that the Dr was using but basically he says that Savannah has a 16% chance of surviving and a high risk of future moderate to major handicaps.
Luckily for us Aunt Sue was returning from Geneva and was able to come to the Hospital and perform a baptism on the babies in the NICU. Needless to say we are shocked and devastated on this recent turn of events. I'm starting to think that this hill doesn't have a bottom to it.

Thursday, April 17, 2008

We are at the Hospital again. Savannah had to have the same surgery Charlton had yesterday. She did well in the surgery although her intestines don't look healthy and it's just a waiting game to see what happens next. Charlton had another increase in oxygen and they increased the amount the ventilator is working for him (Not good)plus they put him on blood pressure medications. I guess we haven't reached the bottom of this hill yet.
Hopefully we willl be going back up soon. This is really having a negative effect on Jen and I.

Wednesday, April 16, 2008

We just got home from the hospital. We have hit and hopefully tackled a major hurdle. Charlton's small intestine ruptured and they had to do surgery to clean out his abdominal cavity. The surgery went well and he is recovering. He will need another surgery to repair the small intestine after he gains some strength. Both babies are requiring more oxygen today and both have been taken off of breast milk. We keep getting told that this is a "roller coaster ride", I think we just went down the first hill.
We went to see them yesterday. Charlton is done with his photo therapy so he doesn't have to wear eye shields anymore, and I got some good pictures of his face. The nurse says he has my jaw line, I don't see it. Savannah is doing much better than her brother in terms of oxygen saturation. Everything else is status quo.