April 22, 2010

Wow, Charlton and Savannah are two years! Time sure does fly. We are getting geared up for the March for Babies Walk coming up on Sunday and CJ and Savannah have their 2 year old wellness visit tomorrow. Looking forward to their progress thus far. Next week they meet with a team of people at Good Sheppard Rehabilitation Hospital to evaluate them and their progress. Sometimes we come home with a list of new specialist, but I am confident that they are going to get a good report card this time.

Well it's been along time since I have made a post. The twins and and our Daughter Ashley have been keeping us very busy. The twins are doing very well and have hit a lot of milestones this past summer. CJ has learned to walk just prior to his 1st birthday. Savannah also amazes us by her contiued progress. She learned to crawl, sit up and stand all in the same month. Now she is preparing to walk by cruising the furniture. She does tend to drag her leg, which is something the doctor is watching. Both babies are having some challenges with their speech and have now added Speech Therapist to their host of doctors. Savannah is our main concern with the speech because she really does not babble like her brother. Either way, the doctors are super impressed with them as we are. Our daughter Ashley just started Kindgarten this week. We are very excited for her, but also worried about all the new germs she will be bringing home.

The babies both were weighed in yesterday at the Pulmonologist. Savannah weighed 16 pounds 3 ounces and Charlton weighed in at 18 pounds 6 ounces. The Pulmonologist seemed concerned about their weight and wants them both to see the Gasto. Doctor. Currently CJ already sees the Gastro. doctor.

CJ had his CF test again last week and thankfully the test came back negative, again. I think it is safe to say at this point that he definitely does not have CF. The other good news is that Savannah has become more vocal. She is really making a lot more noise and is louder than she has been in the past. Both of them continue to amaze us everyday.

The 3 kids went to the Pulmonologist today. They all did well with the lungs and we are going to start adjusting some of Ashley's medicine. The babies will still be on the same steroids. They were concerned about CJ's weight because instead of gaining weight over the last month he actually lost weight. They gave us a new food action plan for him. They also want him to have the Cystic Fibrosis Sweat Test done again. This was a major concern for us while he was in the NICU and now it is a concern again. He will also be having some chest a x-ray done again. Savannah goes to the ENT on Thursday for a follow-up and to make sure the cyst in her throat didn't get any bigger. That's all for now.