Monday, July 14, 2008

Today Chuck and I found out some great news in regards to CJ. Little CJ tested positive when he was born for Cystic Fibrosis, which is a life limiting disease. We didn't realize this until about a month or so after he was born since there seemed to be a lot of inaccurate information surrounding his results. He then had some additional gene testing which was done about 2 mths. ago. The test is very comprehensive, hence why it took so long for the results. We are happy to report that today we had a huge weight lifted off our shoulders when we learned that he tested negative for this awful disease.

We are also hoping to find out tomorrow the date for CJ's surgery. It will either be next week or the following week.

Savannah also had a very exciting day. The doctor told me last week that they did not want to try her on the Nasal Canula for another few weeks or so, however, they thought today was the day. So this morning while I was at the hospital they switched her over to the Nasal Canula. She really fought the nurse when she tried to put in the new nose prongs, but after a few minutes she gave in. Hopefully, she will be able to handle it this time.

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I just checked on the kids and the nurse said they are both doing well. They asked me early today if I wanted to move CJ back on the intensive side since a lot of babies were discharged. Well it didn't take me long to answer that question. So Savannah and CJ are back together again.

Savannah seems to be doing well on the Nasal Canula. She is still having her desaturations, however, they don't seem to be as frequent.