Savannah had her appointment with the ENT (Ears, Nose and Throat)doctor yesterday. The doctor did a scope on her throat and said her vocal cords look good, but she does have some cyst behind them. This is nothing to be worried about at this time, but she will need to be follow up on in 4 mths. It won't affect her speech, but could affect her breathing if they get bigger. The doctor didn't seem too concerned at this point.

Today Chuck took the babies to the Audiologist to re-evaluate their hearing. Before they left the NICU they both passed the test. However, today they both failed on the left ear. It must be a twin thing. Actually we also learned that CJ has an ear infection, which could be the reason he failed. Looks like Chuck will be taking him to the Doctors tomorrow. Savannah is scheduled for a consultation with the Ears, Nose and Throat Doctor on Thursday. Luckily the doctor will be at a clinic 1 hour away, rather than the 2 1/2 hour drive to the Geisinger Medical Center. We were just having her evaluated due to her lack of speech, but now I am wondering if the speech problem is related to the hearing. I guess we will have to wait and see. Please continue to keep our little ones in your prayers.

We spent most of Martin Luther King Jr. day at a the doctors.

The babies had their monthly visit with the Pediatrician to get their Synagis shot as well as some other immunizations shots. We also went through their developmental milestones and 2 hours later we were leaving the office. Savannah weighed in at 12 lbs 8 ounces and Charlton weighed in at 14 lbs 8 ounces. They were not happy with either one's weight and are getting more concerned about Savannah's lack of weight gain. They switched her formula back to Neosure, which is what she was taking in the NICU. We then rushed home to have lunch before we headed off to the Gastrointestinal Dr. 1 hour away. They reviewed Charlton's history and also change his formula to something call ElaCare, which is suppose to be the most broken down formula he can have. You can't even buy it in the stores it has to come through a medical supply company. They also changed his reflux medicine that needs to be mixed at a special pharmacy that does compounding. CJ also had an XRay of his head. I asked the doctor to look at a bump on the back of his head and he thought it would be a good idea to have an XRay. The results came back today and everything is fine.

Today the babies had a follow-up Eye appointment and little Charlton did great. He has no issues at this time. He will be seen again 1 year from now. Savannah's eyes are better in some areas, but her nearsightedness is worse. Actually the numbers doubles since her last visit. At her last visit she was not tracking items and it seemed as though she had a lazy eye. It was also noted on her last item that she was nearsighted. We were happy to hear that she is tracking toys and doesn't appear to have a lazy eye. The doctor said that she will definitely need glasses at her next appointment which will be in 4 mths. He said nothing would change that. I said "I don't know about that, we have had many miracles happen with these babies"

Happy New Year

Happy New Year

The babies met with a team of specialist at Morristown Memorial in what they call their "Special Care Follow up Program." Charlton passed with flying colors and even showed them how he could roll back over after being on his stomach. This was the first time he had done that. They said he is functioning at a 4-6 mth level. (He is currently 5 months corrected) Savannah was measured at a 3-4 month level. She is not yet rolling over like her brother so they gave us some positioning techniques to work with her on. They also want us to change her formula back to Neosure to get the extra calories. We are also going to be scheduling an appt. with a Neurosurgeon to look at the shape of her head to fit her for a helmet. Lastly, she will also need to see an Ear, Nose and Throat specialist to scope her throat to see if there was any damage done to her vocal cord. She may have done some damage when she extubated herself shortly after her operation back in the NICU. She does make some sounds, but it is very quiet and no where near as loud as her brother. They will go back to the Special Care Follow up team in 2 months to be re-evaluated. Also, they will then get their hearing tested again. For the month of January CJ will be seeing another GI doctor for his gastro problems and then they will both be meeting the Opthamologist again for eye exams.