Monday, July 14, 2008

Today Chuck and I found out some great news in regards to CJ. Little CJ tested positive when he was born for Cystic Fibrosis, which is a life limiting disease. We didn't realize this until about a month or so after he was born since there seemed to be a lot of inaccurate information surrounding his results. He then had some additional gene testing which was done about 2 mths. ago. The test is very comprehensive, hence why it took so long for the results. We are happy to report that today we had a huge weight lifted off our shoulders when we learned that he tested negative for this awful disease.

We are also hoping to find out tomorrow the date for CJ's surgery. It will either be next week or the following week.

Savannah also had a very exciting day. The doctor told me last week that they did not want to try her on the Nasal Canula for another few weeks or so, however, they thought today was the day. So this morning while I was at the hospital they switched her over to the Nasal Canula. She really fought the nurse when she tried to put in the new nose prongs, but after a few minutes she gave in. Hopefully, she will be able to handle it this time.

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I just checked on the kids and the nurse said they are both doing well. They asked me early today if I wanted to move CJ back on the intensive side since a lot of babies were discharged. Well it didn't take me long to answer that question. So Savannah and CJ are back together again.

Savannah seems to be doing well on the Nasal Canula. She is still having her desaturations, however, they don't seem to be as frequent.

Sunday, July 13, 2008

Both Savannah and CJ had another good day.

Savannah weighed in at 5 lbs 11 ounces. She is 17.9 inches long.

CJ weighed in at 5 lbs 3.4 ounces. He is 18.5 inches long.

CJ hasn't been weighed yet tonight so I will update the site tomorrow with his information.

Everything else is status quo

Saturday, July 12, 2008

Both CJ and Savannah had a very good day.

Savannah did not have too many disaturations today. It seems that the caffeine is working.

CJ is doing very well with his bottle feedings and is taking 4/5 bottles a day.

Everything else is status quo.

Friday, July 11, 2008

The babies had a very good day yesterday. I have been going to the hospital early in the morning before the AM feeding when they seem to be the most alert and awake. It's really nice to see them when there awake and looking all around bright eyed. They put Savannah back on her caffeine, which really has seemed to make a positive difference in her saturations. I also had the chance to see her get a sponge bath in her little bucket last night, which she really seemed to enjoy. She weighed in a 5 lbs 5.2 ounces.

CJ is doing well. I am hoping he hit his 5 lbs. last night, but unfortunately he was not weighed before we left last night so I will find out this morning.

Everything else is status quo.