Monday, February 9, 2009





Last week we had a very nice visit with Grandma Krause. The kids really enjoyed the visit. It was also nice for Chuck and I to have an extra set of hands to help us out.

We also took Savannah to see a doctor about her head shape to see if it was medically necessary to have cranial banding done or if it was more cosmetic. It was difficult to find a doctor to evaluate her, but we did find one about 45 minutes away at the Lehigh Valley Hospital. The doctor started the evaluation process with Savannah and about 1/2 way through we realized that we had the wrong type of doctor. We were suppose to go to a Neurosurgeon, not a Neurologist. I was a little annoyed because I was given wrong information when I booked the appointment. But, in light of the mistake we actually walked out of the office with a smile on our face. The doctor was extremely nice and knowledgeable. She reviewed Savannah's medical file and then proceeded to evaluate her. She said that Savannah looked wonderful for a child that had such a severe brain bleed. She didn't seem to concerned about Savannah's head shape, but said that she would find someone for us to bring her to for a second opinion. We will now be taking Savannah to a doctor in Philadelphia (2 hrs away) to evaluate her. Hopefully it will be all good news.

Now for the bad news, we are all sick with a stomach bug. Hopefully it will be quick. It sure is hard taking care of a family when you are sick yourself.

The babies will 10 mths. old tomorrow.

Friday, January 30, 2009

Savannah had her appointment with the ENT (Ears, Nose and Throat)doctor yesterday. The doctor did a scope on her throat and said her vocal cords look good, but she does have some cyst behind them. This is nothing to be worried about at this time, but she will need to be follow up on in 4 mths. It won't affect her speech, but could affect her breathing if they get bigger. The doctor didn't seem too concerned at this point.

Monday, January 26, 2009

Today Chuck took the babies to the Audiologist to re-evaluate their hearing. Before they left the NICU they both passed the test. However, today they both failed on the left ear. It must be a twin thing. Actually we also learned that CJ has an ear infection, which could be the reason he failed. Looks like Chuck will be taking him to the Doctors tomorrow. Savannah is scheduled for a consultation with the Ears, Nose and Throat Doctor on Thursday. Luckily the doctor will be at a clinic 1 hour away, rather than the 2 1/2 hour drive to the Geisinger Medical Center. We were just having her evaluated due to her lack of speech, but now I am wondering if the speech problem is related to the hearing. I guess we will have to wait and see. Please continue to keep our little ones in your prayers.

Wednesday, January 21, 2009

We spent most of Martin Luther King Jr. day at a the doctors.

The babies had their monthly visit with the Pediatrician to get their Synagis shot as well as some other immunizations shots. We also went through their developmental milestones and 2 hours later we were leaving the office. Savannah weighed in at 12 lbs 8 ounces and Charlton weighed in at 14 lbs 8 ounces. They were not happy with either one's weight and are getting more concerned about Savannah's lack of weight gain. They switched her formula back to Neosure, which is what she was taking in the NICU. We then rushed home to have lunch before we headed off to the Gastrointestinal Dr. 1 hour away. They reviewed Charlton's history and also change his formula to something call ElaCare, which is suppose to be the most broken down formula he can have. You can't even buy it in the stores it has to come through a medical supply company. They also changed his reflux medicine that needs to be mixed at a special pharmacy that does compounding. CJ also had an XRay of his head. I asked the doctor to look at a bump on the back of his head and he thought it would be a good idea to have an XRay. The results came back today and everything is fine.

Thursday, January 15, 2009

Today the babies had a follow-up Eye appointment and little Charlton did great. He has no issues at this time. He will be seen again 1 year from now. Savannah's eyes are better in some areas, but her nearsightedness is worse. Actually the numbers doubles since her last visit. At her last visit she was not tracking items and it seemed as though she had a lazy eye. It was also noted on her last item that she was nearsighted. We were happy to hear that she is tracking toys and doesn't appear to have a lazy eye. The doctor said that she will definitely need glasses at her next appointment which will be in 4 mths. He said nothing would change that. I said "I don't know about that, we have had many miracles happen with these babies"

Monday, January 12, 2009