Tuesday, May 6, 2008

We had a very nice visit with the babies today and are still currently at the hospital since this morning. We also found a local park in Chatam, NJ that Ashley really enjoyed.

CJ: He seemed to be resting peacefully for most of the day and still has his ups and downs with the vent. He is still on his feedings and is slowly gaining weight.

Savannah: She has also been resting peacefully today and continues to do well on her C.P.A.P. Her brain ultrasound was done this morning and showed that she is still at a level 3 bleed. They are also checking to make sure that no water appears on the brain or else they would need to put in a shunt. Luckily it appears that no water is on the brain. They will continue to check for the next 6 weeks or so to make sure it does not develop.

They have also increased her feedings again and she now weighs, 1lb 11oz.

Both babies were re-checked for a disease called CAH, which came back as negative so we were very pleased with that. They were also checked for Cystic Fibrosis which also came back as negative, another good thing.

Monday, May 5, 2008

Both Savannah and CJ had a fairly decent day.

CJ: Is still having problems with his lungs and it appears by x-ray that the right lung is still collapsed. He is still doing well with the lower settings on the conventional ventilator. He is now 1lb 10 oz which is actually the same as Savannah.

Savannah: She is doing very well on the C.P.A.P and we are being optimistic that she will continue to do well on it. She also weighs 1 lb. 10 oz. They had to stop her feedings a few times yesterday due to the reserve of "green stuff" that was in her belly. However, as of late last night they were going to start feeding her again 2 ml and hour.

Today we will be getting new results of Savannah's brain bleed and are praying for a miracle that it has disappeared. We will also be attending a class tonight that explains life in the NICU for the family. I guess we are in for the long haul. Most babies that are in the NICU stay in the NICU until their due date. My 40 week due date would have been July 29th. We are just hoping and praying that they will be able to get well enough to come by then.

We have also found a wonderful "MicroPreemie" group online that has been extremely supportive and has been able to answer a lot of our questions since they have been or are currently in the same boat as us.

Sunday, May 4, 2008

Not a whole lot has changed in the last two days. Savannah's stomach got over inflated from the c-pap. and her feedings so they have stopped her feedings for the last 24 hours but she's due to start feeding again tomorrow morning. She is doing well on her c-pap (almost 4 days now) and needing less supplemental oxygen. No changes for Charlton, he's still intubated and he's weening off of the supplemental oxygen slowly but surely.

Friday, May 2, 2008

Charlton has took a turn for the worse tonight and has to be put back on the ventilator. We were really hoping that he was going to be able to hold his own, but his little lungs are just not ready to work so hard.

Savannah still seems to be doing ok with the C.P.A.P.
The babies are still doing ok on their C.P.A.P. The nurses are having to constantly adjust their settings, but for the most part they are handling it. They are both still on the same feeding schedule as noted on Wednesday. For the most part they are status quo, which in their case is good news.

We also want to thank everyone for your continued support and prayers.

Thursday, May 1, 2008

We called the hospital tonight (10:05pm) to see how they are doing with the C.P.A.P and so far both are doing ok with it. We are very proud of them both.
We were surprised when we got to the Hospital today to find that Savannah was no longer on the ventilator and doing well! Then while we sat there with Savannah they took Charlton off the ventilator too! Charltons transition was really scary and he needed to be bagged but he seems to have calmed down now. Dr's say the next 48 hours will be a huge test and struggle to see if they can remain off the ventilators. What they are on now is called C.P.A.P. (continuous positive air pressure). They are getting oxygen through their noses but now they have to do the breathing. Now they don't have anything obstructing their vocal chords so they can cry if they want to, I haven't heard them cry yet. Other than that they are going to try to leave Charlton alone until Friday and I think Savannah is having some blood work done around 2 pm today.