Saturday, May 10, 03:03 PM Great Aunt Sue/Godmother
What a joy to visit the twins on their one month birth anniversary! Of course, they are the cutest and brightest kids in the NICU! Today they learned a new trick - Charlton would take a dip on his oxygen levels and then rebound and Savannah, not to be out done, would take a dip and then recover. I think they like to keep the staff on their toes and make the alarm bells ring. Sitting in between them and observing the action is like watching a tennis match in a Vegas Casino. Seriously, it is a bit unnerving - but they are being cared for by an excellent staff - and we are grateful. Got to go - time to play "animals" with Ashley.
Saturday, May 10, 2008
Friday, May 9, 2008
Charlton: The doctor decided to extubate him this afternoon and put him on the C.P.A.P. The first blood gas numbers did not look good so they added a Nasal Inv., which they said is helping him. I guess only time will tell to see how this works out for him.
They stopped his feedings to give him some time to adjust to the new equipment and will start them again a little later in the day.
Savannah: She has being doing ok on the C.P.A.P, but are starting to notice a trend with her Apnea. Her saturation levels really drop after she eats because of the food and all the air from the C.P.A.P that stays in her stomach. She is continuing to be fed a 6 ML every 3 hours over a 2 hour period.
They stopped his feedings to give him some time to adjust to the new equipment and will start them again a little later in the day.
Savannah: She has being doing ok on the C.P.A.P, but are starting to notice a trend with her Apnea. Her saturation levels really drop after she eats because of the food and all the air from the C.P.A.P that stays in her stomach. She is continuing to be fed a 6 ML every 3 hours over a 2 hour period.
Thursday, May 8, 2008
Charlton: His chest x-ray this morning still did not look that great, however, the doctor still wants to try to extubate him today. The doctor feels that the problems he is having may be caused by the intubation tube in his chest. At this time they still have not extubated him, but we think they will later tonight or possible tomorrow morning. We are really hoping/praying that the 3rd time will be the charm. Once he is extubated he will be put on C.P.A.P again.
They have increased his feedings to 5 ml every hour. He now weighs 1 lb. 12 oz. Only four more to go until he reaches his 2 lb. milestone.
They also gave him a binky/pacifier today, which he really seemed to enjoy. (see new pics.)
Savannah: She continues to amaze us by how well she is doing. We learned some new information today on her status which showed us how strong she really is. A while back I mentioned that she had an infection just after her birth. It turned out that the infection was life threatening and that the doctors really did not expect her to survive it. In addition, the infection could have led to Meningitis. They informed us that they did a spinal tap on her today for Meningitis and this came back negative.
She is not gaining as much as Charlton, but they have increased her feedings today to be 5 ml every hour as well.
She weighs 1 lb. 11 oz
They have increased his feedings to 5 ml every hour. He now weighs 1 lb. 12 oz. Only four more to go until he reaches his 2 lb. milestone.
They also gave him a binky/pacifier today, which he really seemed to enjoy. (see new pics.)
Savannah: She continues to amaze us by how well she is doing. We learned some new information today on her status which showed us how strong she really is. A while back I mentioned that she had an infection just after her birth. It turned out that the infection was life threatening and that the doctors really did not expect her to survive it. In addition, the infection could have led to Meningitis. They informed us that they did a spinal tap on her today for Meningitis and this came back negative.
She is not gaining as much as Charlton, but they have increased her feedings today to be 5 ml every hour as well.
She weighs 1 lb. 11 oz
Tuesday, May 6, 2008
We had a very nice visit with the babies today and are still currently at the hospital since this morning. We also found a local park in Chatam, NJ that Ashley really enjoyed.
CJ: He seemed to be resting peacefully for most of the day and still has his ups and downs with the vent. He is still on his feedings and is slowly gaining weight.
Savannah: She has also been resting peacefully today and continues to do well on her C.P.A.P. Her brain ultrasound was done this morning and showed that she is still at a level 3 bleed. They are also checking to make sure that no water appears on the brain or else they would need to put in a shunt. Luckily it appears that no water is on the brain. They will continue to check for the next 6 weeks or so to make sure it does not develop.
They have also increased her feedings again and she now weighs, 1lb 11oz.
Both babies were re-checked for a disease called CAH, which came back as negative so we were very pleased with that. They were also checked for Cystic Fibrosis which also came back as negative, another good thing.
CJ: He seemed to be resting peacefully for most of the day and still has his ups and downs with the vent. He is still on his feedings and is slowly gaining weight.
Savannah: She has also been resting peacefully today and continues to do well on her C.P.A.P. Her brain ultrasound was done this morning and showed that she is still at a level 3 bleed. They are also checking to make sure that no water appears on the brain or else they would need to put in a shunt. Luckily it appears that no water is on the brain. They will continue to check for the next 6 weeks or so to make sure it does not develop.
They have also increased her feedings again and she now weighs, 1lb 11oz.
Both babies were re-checked for a disease called CAH, which came back as negative so we were very pleased with that. They were also checked for Cystic Fibrosis which also came back as negative, another good thing.
Monday, May 5, 2008
Both Savannah and CJ had a fairly decent day.
CJ: Is still having problems with his lungs and it appears by x-ray that the right lung is still collapsed. He is still doing well with the lower settings on the conventional ventilator. He is now 1lb 10 oz which is actually the same as Savannah.
Savannah: She is doing very well on the C.P.A.P and we are being optimistic that she will continue to do well on it. She also weighs 1 lb. 10 oz. They had to stop her feedings a few times yesterday due to the reserve of "green stuff" that was in her belly. However, as of late last night they were going to start feeding her again 2 ml and hour.
Today we will be getting new results of Savannah's brain bleed and are praying for a miracle that it has disappeared. We will also be attending a class tonight that explains life in the NICU for the family. I guess we are in for the long haul. Most babies that are in the NICU stay in the NICU until their due date. My 40 week due date would have been July 29th. We are just hoping and praying that they will be able to get well enough to come by then.
We have also found a wonderful "MicroPreemie" group online that has been extremely supportive and has been able to answer a lot of our questions since they have been or are currently in the same boat as us.
CJ: Is still having problems with his lungs and it appears by x-ray that the right lung is still collapsed. He is still doing well with the lower settings on the conventional ventilator. He is now 1lb 10 oz which is actually the same as Savannah.
Savannah: She is doing very well on the C.P.A.P and we are being optimistic that she will continue to do well on it. She also weighs 1 lb. 10 oz. They had to stop her feedings a few times yesterday due to the reserve of "green stuff" that was in her belly. However, as of late last night they were going to start feeding her again 2 ml and hour.
Today we will be getting new results of Savannah's brain bleed and are praying for a miracle that it has disappeared. We will also be attending a class tonight that explains life in the NICU for the family. I guess we are in for the long haul. Most babies that are in the NICU stay in the NICU until their due date. My 40 week due date would have been July 29th. We are just hoping and praying that they will be able to get well enough to come by then.
We have also found a wonderful "MicroPreemie" group online that has been extremely supportive and has been able to answer a lot of our questions since they have been or are currently in the same boat as us.
Sunday, May 4, 2008
Not a whole lot has changed in the last two days. Savannah's stomach got over inflated from the c-pap. and her feedings so they have stopped her feedings for the last 24 hours but she's due to start feeding again tomorrow morning. She is doing well on her c-pap (almost 4 days now) and needing less supplemental oxygen. No changes for Charlton, he's still intubated and he's weening off of the supplemental oxygen slowly but surely.
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